When You Don’t Bring Your Baby Home

“LIFE AS A BEREAVED MOTHER IS A DAILY BATTLE OF GUILT, FEAR, CONFUSION AND ANGER. IT'S WANTING TO USE THE PASSIONATE LOVE I HAVE FOR HIM TO KEEP HIS MEMORY ALIVE, TO FIGHT FOR A CURE OR PREVENTION RESEARCH TO MAKE SURE THIS DOESN'T HAPPEN TO OTHER CHILDREN, MOTHERS AND FATHERS. IT'S TRYING YOUR HARDEST TO SUPPORT THOSE GOING THROUGH THIS PAIN THAT YOU NOW KNOW ALL TOO WELL. YET, AT THE SAME TIME, IT'S THE WEIGHT OF YOUR EMPTY, CHILDLESS ARMS THAT CRASHES INTO YOU FORCING YOU BACK INTO YOUR HARSH REALITY. IT'S WANTING YOUR PAIN TO END AND WANTING TO BE WITH YOUR CHILD, WHEREVER THEY MAY BE.”

-Natalie Patterson, Reid’s Mother

THIS IS A PERSON. HE HAD A LIFE AND A SOUL AND A STORY. HE HAD A FAMILY. HE HAD A HEARTBEAT, HANDS YOU COULD HOLD, TOES YOU COULD COUNT, CHEEKS YOU COULD KISS. HE HAD A NAME. HE HAD EYES HIS PARENTS NEVER SAW. HE HAD A CRY HIS MOTHER NEVER HEARD. HE WAS HELD BY HIS PARENTS FOR ONLY HOURS BEFORE HIS LIFE AND HIS SOUL AND HIS STORY ENDED. HIS NAME WAS REID.



Peoria IL birth photographer Brittney Hogue photographs CDH baby Reid Patterson coming out of OR after birth.

My first email from Natalie came through when she was about 19 weeks pregnant. She said she had never thought about a birth photographer, but after seeing the photos and watching the films on my website— she was beyond moved. She needed this. A week later, we learned of Reid’s diagnosis and throughout Natalie’s pregnancy, Reid’s chance at survival was debated. But we went into the birth optimistic and ready to meet this child.

Reid Patterson. Congenital Diaphragmatic Hernia. Now I Lay Me Down To Sleep. Child death photography. Peoria IL.

I met Reid in a hallway. He was barely distinguishable under the tubes and tape and blankets. He was already sedated for his safety, intubated for his survival. The only clear feature I could really see in those 30 seconds given to us, was his perfectly formed little nose peeping out from under his eye mask.

The neonatologist barely paused in the onslaught of informed consents.

“We only have about 30 seconds to stop, dad.” Reid was quickly pushed through the hallways of the hospital, neonatologist and Ryan following behind. Ryan got to touch Reid’s hand. It was all you could touch.

NICU nurses transport CDH baby Reid Patterson through the hospital to CHOI. An OSF employee in the hallway prays as we pass.

We rounded the corner to the secured doors of the NICU and despite being told for hours I would be able to accompany Ryan even into the NICU at time of birth, the neonatalogist took that from us. Reid was most important, there wasn’t time to question the decision. I met Ryan’s eyes for the briefest of moments as the secured doors powered opened with a click and swoosh of hydrolic pressure. He was tired. He was terrified. He seemed in that moment… like a shadow of a person.

I waited in the NICU waiting room for two hours. Natalie’s sister joined me at some point and we together waited for updates on Natalie’s condition. She was in recovery for much, much longer than other moms. Her adrenaline was so strong, she kept blowing through every pain medication they pushed into her. She hadn’t seen her husband. She hadn’t seen her baby. And due to being under general anesthesia, she wasn’t allowed to have anyone in recovery with her but her nurse.
We waited.

Mother Natalie sees father Ryan for the first time in four hours since leaving for the OR for c-section. The birth and death of Reid Patterson, congenital diaphragmatic hernia. Peoria IL.

Natalie came down a hallway in a hospital bed. I don’t remember it for sure, but I feel like we ran to meet her. This was the first moment Natalie and Ryan had spoken or seen each other in hours. Several hours. And none of us— Natalie, Ryan, Alli, myself— had anything to say. We all felt the same things in those moments.

Ryan, Natalie, the nurse and I proceeded through the doors of NICU. We walked past a neighborhood and turned into Airplane. How can these teal walls feel cheery and sterile at the same time? It’s quiet in NICU. Drop a dime on the floor and it echos quiet. There’s just beeps and whirls of medical equipment, the sound of a chair rolling. Babies don’t cry here. They are to weak or too small to do so.

We rounded a tight corner into room 314. It was L shaped and not exactly ideal for a hospital bed to fit in. A team of people was present performing an ECHO. I tried not to look at Reid before Natalie could. It just felt so wrong that a dozen people got to see him first. Family, nurses, neonatologists, radiologists, a housekeeper in the hallway shouting, “Praise Jesus, heal this child!” as we wheeled past her. Natalie deserved this small gift, to in the tiniest of ways, be the first to see him.

Mother Natalie Patterson meets baby Reid for the first time. Peoria IL. OSF ST Francis Medical Center. Children’s Hospital of IL. Birth photography. Bereavement photography. Now I Lay Me Down to Sleep.

Natalie came alive in this moment. You have to understand where she was physically at this point. After 24+ hours of no sleep, being forced under general anesthesia, being isolated from any one she knew for hours as her body continuously broke through every pain medication. She screamed in agony for a fundal massage. She was hazy. She was so full of analgesics, I’m not sure how she formed any memories of this beyond a completely soul crushing need to meet her son.

I watched Natalie’s biologically driven need to touch her child emanate from her. Though she was just a couple of hours post-op from an abdominal surgery, she grabbed onto the rails of her bed and pushed herself up, hurling over the side to get to him. It was swift and urgent. I was surprised at how quickly she moved. If she had to walk in that moment to see him, I think she could have.

THE ROOM WAS QUIET. THE ONLY SOUNDS WERE THAT OF REID’S MACHINES PUSHING AIR INTO HIM, MEDICATION INTO HIM, FLUID INTO HIM… AND THE SOUNDS OF NATALIE’S SOBS FIGHTING THEIR WAY OUT OF HER EXHAUSTED BODY.

Natalie reaches for baby Reid in the NICU at OSF St Francis Peoria. NICU photography, Peoria IL.
The Patterson Family.

The Patterson Family.

I cannot image this moment for them. This grief, this hope, this joy, this hardship. The first minutes of finally being together. Ten minutes time in a life that only lasted four days.

In this moment, we did not understand, any of us, how frail Reid really was. My heart was just bursting with every human emotion I have ever experienced all at once. It wasn’t my story. Not even in the slightest. But being a part of this changes something in you. You’re not the same person once you have walked this intimately in a family’s journey with them.

Before Natalie was ready to, she was required to leave. A fundal massage was needed and due to her uncontrolled pain, it couldn’t happen in NICU. She would overstimulate her baby and others in the neighborhood. I thought my heart had broken already, but when I saw a mother separated from her child with no sure guarantee of ever seeing him alive again… well, it broke even more.

She left her hand on his head as the nurse started to pull her away. It felt like in that moment she was able to break through the level of anesthesia and medications pumped into her… long enough to understand the full magnitude and gravity of the last hours of her life. A day before she was laboring with smiles and laughter and happiness and excitement and positivity. Her son was safe in her womb, at least much safer than in this moment. I cannot image what the full weight of the world could feel like. But I know in this minute of time, of all of the people in the entire universe, Natalie felt every ounce of it.

Reid Patterson. Congenital diaphragmatic hernia. Peoria IL.
Natalie, mother, says good bye too soon to Reid to return to postpartum recovery.
Reid Patterson. November 2019. Congenital diaphragmatic hernia. Peoria IL
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